Wednesday, November 4, 2009

Going Home Today

(Mary Jo Atkins Barnett and Maggie, 1955, passport photo for going to India)

When I woke up from the RT shakiing my shoulder at 7 a.m., the Roches were singing in my head "We're going away to Ireland soon" with muted glee. It's been three weeks today since I was admitted, and I cannot account for a lot of that time. My Narrative has defiinitely been interrupted. A lot of memories wade in and out like scenes from a bad 60's "message movie".

Everytime I think about getting out of here, my chest relaxes a little and I breathe better. It will be hellishly hard on my own but no one will be opening my front door without my choice, and no more small talk, which is to conversation as WalMart is to small town main street commerce. Pajamas and keyboard, that's enough for me. (grin)

One thing that has emerged as my attention returned is that my attraction to folks who are looking for a place to tell their troubles has spread up and down the hall, apparently. I'm a better listener than I am storyteller, but at home I have a stopcock to control who dips into my well. Yesterday I earnestly told Erlinda, the tech of techs, how much everyone here admires her quick learning and leadership. She was clocking out for the day, but stayed at my bedside for half an hour to tell me what it was like raising her three abandoned nieces the past 9 years. Honestly, it's a tale I'm honored to have heard, altered my appreciation for others ever upward -- but what is it I do that inspires others to confide in me? In Erlinda's case, I wanted to hear. Otherwise, I am not even watching the daily reruns on cable of "Grey's Anatomy" -- my own body and midstream ordeal is swallowing the lion's share of my focus right now, and as Stuart Smalley would say, "That's okay."

Yesterday as I was warshing up (as one tech says it), I examined the altered corpus Maggie carefully. The blown IV sites and JP drain scab will go away entirely, I think. But the contours of my front are permanently rearranged -- large capstone bulge gone, everything listed to the right, and a wicked ruck from just below my breasts through my navel like the Hayward Fault when viewed from Mount Diablo. There'll be no problem saying "Yep, that's her" if I wind up mangled on some CSI slab.

Surgeons go directly to the source of an issue and tend not to deal with the aftereffects. This is seen as more efficient, as all versions of Henry Ford compartmentalization are now revered as most productive. I always question this ethic but especially now, as I hear the muttered resentment techs have toward nurses (who say "call a tech" for ass wiping) and the sullen obeisance nurses display toward doctors who breeze in and out far more obliviously than even the most gritty TV drama depicts. When we added making a profit to the work of caregiving -- and especially Reagan's permission to be greedy as an America ethic -- we created the monster that our government is currently too feckless to tame.

Thanks to Jill Cozzi, by the way, for reminding me of the excellent meaning of that word, feckless.

In contrast, a Quaker man, Sean Carroll, is arranging for a CarShare to get me home after my discharge today, since he doesn't own a vehicle. He's already done all the shopping I need to be safe-ish at home , except for the correct size diapers, which will arrive via FedEx tomorrow -- although at least 1/3 of all American women weigh 200 lb. or more, this hospital doesn't stock diapers that go beyond that size, nor would they research finding them for me. Thank g*d I was alert enough and able to get online to meet my own basic dignity needs.

You know, lesbian-feminism of the early 1970s is where I first encountered the concept of political correctness, and it's never been a joke to me. At bedrock, political correctness is about striving to express respect and kindness according to cultural values which may vary from the ones you were raised with. Respect, privacy, pluralism: arch enemies of the fear-based Right.

I don't know why, but for the last 24 hours a particular memory has been popping into my head, as it did just now. It's my first memory, and occurred when I was around one year age. We were living in Kolkata and I was out for the day with Nilmoni, my ayah. We were in what my mother called a rickshah, which was in fact a horse-drawn cart with a single horse. We turned into a street clogged with a mob. Nilmoni began shouting at the cart driver to get us out of there, but we were already being surrounded and horses have to be turned, there is no reverse gear. I was in her lap, held tight, and she put one hand over my face to block my vision. I tugged at her fingers ineffectually, then discovered if I opened my eyes I could see between her slightly spread fingers. I went still, watching with interest.

The crowd was all Indian, which was normal to me, I thought I was too. It was all male, and they were angry, but I wasn't worried because I was with Nilmoni. They were holding aloft, above their outstretched arms, two items: a round of bread and a man, passing them toward one side of the street. The man was struggling, wild-eyed, shirtless. It was intriguing to see an adult passed around as easily as I was.

At the side of the street was a two-story building with outside stairs to an upper landing. The stairs had no railing but the landing had a wooden frame around it. A rivulet of the mob swirled up the stairs and the flailing man was passed upward from arm to arm. Someone on the landing had a rope which was tied to the porch. As the man reached the landing, the other end of the rope was knotted around his neck. With a roaring surge, matched by Nilmoni's shrieks at our cart driver, the shirtless man was thrown over the railing in a small arc. He slammed against the side of the building and a seond later reached rope's end. He scrabbled frantically at the stucco wall with fingernails and feet to find a purchase. Before he could, our cart finally turned out of view. I tried to turn my head to watch but Nilmoni held me fast.

I didn't understand what had happened, and there is no negative emotion in this memory, only excitement about curious adult behavior. It is vivid -- the bright sun with dust in the air, hoarse shouting, Nilmoni's smell, and the look on the face of the shirtless man, his dark sweaty skin and the visible ribs on his torso. Years later, when I was six or so, I began telling my mother about the memory to ask her what it all meant; I thought of it often. She sat down heavily in her kitchen chair, her face horrified, repeating "My god, my god."

She knew the incident. Nilmoni had told her about it when we got home that day. They were both reassured by their belief I hadn't seen anything, and did not want to discuss it with me. Mama said the man was from the untouchable class, still a strong practice in 1956, and he had stolen the round of bread.

Now I have two versions of the memory, my original and the unspeakable horror of what actually occurred as Mama gently explained it to me later.

Sorting out this cacophony we call life takes up all our time. I'm going away to Ireland soon, will be home tonight, and can resume my sift in solitude. Aching, incontinent, exhausted, in a mess of a house, but with just me and Dinah to accommodate. There is peace and wonder to be found in any situation, even death, they tell us. I'll write again as soon as I can.

The Roches singing "The Troubles" in 1983

[Cross-posted at Meta Watershed.]
There's more...

Monday, November 2, 2009

Cheney and the F.B.I.

I Don't Know Nuthin'

'bout no Valerie Plame stuff...

I don't know nuthin' bout no talking with the press...


I don't know nuthin' 'bout birthin' no goddamned babies....

I do know that Congress, 'specially that Leahey chump, can go fuck theyselves.



How long will we stand to listen to this absolute contempt for our laws, our freedoms, and our very way of life? He is, and has for most of his public career viewed that things like law and simple human decency are for the "little people."

Not big important sons of bitches like himself.

There's more...

Sunday, November 1, 2009

Sunday Morning Maggie Jochild Update

Three Items

1. Maggie's using Twitter.

@jochild

that is

http://twitter.com/jochild

to post updates.

She says "I can manage 140 characters."

Her Twitter feed is totally worth reading. She's a poet, right? She gets a LOT into her 140 characters. *smiles*

2. Maggie probably won't be discharged today.

At the moment from reading the orders the Fill-In Doctor has left, it appears Maggie will not be discharged till at least tomorrow. We believe (but don't know for certain) that Good Doctor will be back tomorrow. Good Doctor is the one who has been standing up for Maggie.

Her physical strength gets stronger day by day. No matter when she gets discharged, going home will be very very hard. She will endure and survive; it is what she does.

3. We still need to raise $1500 (or more); we just have to see.

Maggie's Binder, a device she wears around her entire abdomen and back in order to keep the surgical incision from coming open, which makes it DAMN difficult to do many ordinary functions (as the Binder goes WAY up almost over one's ribs and down low to the bottom of the lower belly thus leaving one's entire middle in a splint) which means for the next two months Maggie will not just have big difficulty, pardon me, cleaning herself after using the bathroom, but she'll also find it difficult to sit up straight to use the computer (her little Netbook is different, and no, her work software won't load on her Netbook), to walk through her apartment to put away food or cook a meal, or any of the basics of life. She can lie down; she can prop against some pillows; with difficulty she can turn over. She can NOT ever ever ever put any fracking strain on her abdomen. At all. Or she might (literally) find her guts all over her bedroom, bathroom, or kitchen floor.

Thus DME (Durable Medical Equipment) for rails on her bed, rails in the bathtub, a higher toilet seat, and much other stuff. Maggie will need enormously higher quality food than she can usually afford (her regular food budget is $140 per month; yes, seriously. If you've ever had a meal or even a meal for two that cost $140 or more not including booze, raise your hand. Look around. Notice that over 80% of our readers have their hand raised. Thank you. Okay, put your hands down please.) and more medicines than she normally can afford (at best she can maybe afford $10 in generics per month plus another $10 in OTC medicine. That's on a good month. The rest of the time she goes without and suffers. I who have health insurance -- and I complain about my prescription drug copays -- pay about $120-150 per month on average for prescription drugs (which I must have or I'd be in the hospital or dead or unable to work and then in the hospital and then dead; like in the same situation as Maggie, so poor I'd be absolutely fucked plus pain beyond compare from the lack of meds... Most likely I'd end up, well, let's not even go there. *shudders*) Some months I pay $200-250 if I get extra sick or the doctors want me to try something new. The retail price of the medicines is around $2500-3500, I'm not certain; I've never really checked because the most I ever pay for a drug is $50, most are either $5 or $25. And being in the upper-middle class I can afford them.) Maggie will need cab rides to visits with her doctors, physical therapists, x-ray examinations on the surgery, at least some of which she'll likely have to pay for in cash as there's no way her Medicare will have come through by then. (We're working out how to pay for these services but some of them don't look good; if we can't pay for them it may be she'll just do without if we don't raise the money... which is how we got into this mess in the first place.)

Bottom line, we still need to raise much more money for Maggie.

My request is that folks subscribe, that is commit to a monthly amount via PayPal of $200, $100, $50, $20, $10, $5, mix and match. Or you can go to Meta Watershead and in the top right corner, hit the Donate button with any amount for a one-off donation. At Meta the Subscription buttons are also there for $5 to $10 monthly, to $20 or $50 a month, and for a number of you, $100 or $200 a month.

A choice: If you're choosing between a one-off donation of $50 or less and a subscription of any amount, please go with the subscription. What, huh? It's simple, really. We'd much rather have the certainty of knowing Maggie can count on that amount from you,  even if it's only a large cup of Starbucks cappuccino or a dinner out. Or maybe a dinner out for two. *smiles* The reliability of being able to trust the subscription in the months to come means much more than a larger one-off donation now. It means stability. It means knowing Maggie has her bills paid every month. It means cash-flow.

Speaking of cash-flow, frankly the present-value of a smaller subscription over time is MUCH less to you than a really big one-off donation now. Now obviously we'd love for you to make a big subscription (don't kid yourself; feel free to subscribe to those $100 and $200 buttons, that's why they're there. I and I think two other people are on the $200/mo subscription. Plus I made additional donations every month.) but we're cool if you don't. What we're saying first is that the present-value to YOU is better if you give less each month than if you dig really deep and make a one-time really big donation. Plus that way you get to keep all that interest till PayPal sends whatever the amount is off to Maggie.

From our point of view, a bunch of monthly subscriptions means we can all breath a little easier knowing each month isn't a scramble for Maggie to survive financially. (And yeah, we've applied for all the various financial aid programs, federal, state and even local, but it's going to take at least half a year for them to kick in, and that's assuming all goes well. We have this on good authority from the financial aid/social worker at the hospital Maggie's in whose job it is to get this aid for people.) So for now, y'all... we ...are everything Maggie has financially.

Thus, from two and a half weeks ago until we reach whatever the financial goal turns out to be, $4,000 or a bit more (and we're just not sure yet; ye Gods how I wish we were) what there is is for me to ask you... Please:

Please reach out for Maggie. Step up and make a monthly subscription: $200, $100, $50, $20, $10, $5, or jumble them as you wish.

Your generosity to date has been overwhelming. Not just with money, but with your good wishes, with people offering to help -- we have one person running errands in Austin, y'all have donated not one but two Netbooks (and maybe a third, not sure yet) and we're still figuring what to do with the extra one, and most of all your heart in being there, talking to Maggie on multiple blogs and emails blows me away.

She, and I love all of you so much, are so deeply moved by who you are and what you are doing to help her. As a group of people and as individuals you have really stepped up. You amaze me; you inspire me. Thank you for the gift you have been, and for the gift and contribution you continue to be to Maggie. I honor you for who you are and for the difference you make. Maggie is alive and getting better each day and it would not have happened without her friends and all of you being the difference in her life. Thank you for being you and for loving one another.

Every religion has some version of the Golden Rule. You my precious readers and friends, are living examples of how both the Practice of spirituality and the Golden Rule are designed to work on the ground. The Blessings of the Gods on each and all of you, your families, loved ones, and those with whom you work and associate.

Cross-posted at Meta Watershed and Group News Blog.

There's more...

Happy New Year


(Trail through grass, photo by R. Planck -- my current desktop image.)

In the house of long life
there I wander.
In the house of happyness,
there I wander.
Beauty before me,
with it I wander.
Beauty behind me,
with it I wander.
Beauty below me,
with it I wander.
Beauty above me,
with it I wander.
Beauty all arround me,
with it I wander.
In old age traveling,
with it I wander.
On the beautiful trail I am,
with it I wander.


In the culture of the majority of my ancestors (Scots, Welsh, Irish), today is the New Year. Here in Central Texas, it is Dia de Los Muertos. Since I am bound and cannot go even to Friends Meeting, I am repeating the Dine morning prayer to myself and contemplating the treat of a bagel for brex. If they'll let me have it and if it comes with a schmear. Onion or garlic if I'm very lucky.

I was at Shungopovi for the Antelope Dances the last time I spoke with my mother. I camped on Second Mesa and had to drive a ways to find a phone to call her. Something unexplainable happened that day at the dances; I try to write about it but can't tell it right. The next day I went to Canyon de Chelly, and the following afternoon she died in the blink of an eye, finally having escaped my tether.

I don't know the connection yet, but since awakening that old Alix Dobkin song "OKOY" has been playing in my head:

Maybe time alone will soothe our bones
And clo-o-ose the wounds


I'm angry that I don't have the language of my ancestors, maybe Gaelic has tenses or vocabulary to tell the stories lodged in me. I'm angry at how far the the edge I slid, toward my mama and brother's path despite swearing to myself (and Martha) that I would not. I'm angry that my values and choices mean poverty in this culture, and that poverty is not simply limiting but interpreted by institutions and much of Christianity (founded by a man who chose poverty) as dishonorable.

I'm angry about Steve Gilliard's death on a whole new level, as if he were my little brother.

I'm right at the edge of being able to go home and fend for myself. A man with whom I sat in Friends Meeting here for decades, Sean Carroll, contacted Jesse to help me in town. He has been shopping for the DME, household supplies, and good food I'll need to return home -- using money y'all sent. He doesn't own a vehicle but keeps borrowing one or arranging for CarShare to run errands, and has offered to be my ride home when I am discharged. He is bedrock that arose from the waves. He keeps thanking me and Jesse for the opportunity to be of service.

I know how he feels, that's the thing.

I'm terrified about how hard the next two months of recovery will be, even as time and good will closes the ruptures of this year. The only way to face it, this new year, is to remember I walk in beauty and to rest in the altered manner taught to me yesterday by Heather the PT -- who also grew up poor and decisively called me on what Mama always said: "Use it up / Wear it out / Make it do / Or do without." A bad adage when it comes to bodies, although the poor and working classes often have no choice about it.

I just stopped to order breakfast -- yes to the toasted bagel with cream cheese.

I am the only person left to tell the stories of my people in a way so they quilt together with your own stories. I was born and raised to do this. I'm not done yet. Narrative may be our most persistent delusion, but it's how we recognize one another in the dark and this introvert really does want to be with you all, as long as I can have a room of my own too. More to come.

[Cross-posted at Meta Watershed and Group News Blog.]
There's more...

CEO of Google, interviewed at Gartner Symposium



interesting stuff.

There's more...